CTI Rare Disease Day Fundraiser
CTI Clinical Trial and Consulting Services is organising this fundraiser ahead of Rare Disease Day (28 February) to share with employees in the Asia-Pacific region.
About Rare Disease Day
Rare Disease Day is marked on the last day of February annually. In 2025, Rare Disease Day falls on 28 February. The 2025 Rare Disease Day video showcases people living with a range of rare diseases from all around the world, including former RVA Ambassador, Tammie Rees, and her daughter Ava who lives with Maple Syrup Urine Disease, a rare metabolic disease.
As the national peak body for Australians living with a rare disease, Rare Voices Australia (RVA) is the national alliance representing Australia in annual Rare Disease Day preparations. RVA is also on the Rare Disease Day Steering Committee, which takes a longer-term strategic view of the campaign.
Official 2025 Rare Disease Day Video
About the CTI Rare Disease Day Fundraiser
This fundraiser is for CTI employees in the Asia-Pacific region. Funds raised will help RVA to continue overseeing the collaborative implementation of the Australian Government’s National Strategic Action Plan for Rare Diseases, and contribute to achieving the best possible health and wellbeing outcomes for Australians living with a rare disease.